In the absence of any policy for rare diseases, the Delhi High Court has directed the All India Institute of Medical Sciences to start the treatment of an 18-month-old girl suffering from a rare disease called ‘Gaucher’. (Alishba Khan vs UOI)
As per the Court's order, no charges for the treatment would be levied on the child and further directions in respect of the expenses would be passed after the Central Government enters appearance in the matter.