rare diseases

Release ₹5 crore to AIIMS for treatment of children with rare diseases: Delhi High Court to Central government

Release ₹5 crore to AIIMS for treatment of children with rare diseases: Delhi High Court to Central government

19 Feb 2023

2 min read

Kerala High Court initiates suo motu PIL to include Congenital Adrenal Hyperplasia in group of rare diseases

Kerala High Court initiates suo motu PIL to include Congenital Adrenal Hyperplasia in group of rare diseases

Sara Susan Jiji

27 Sep 2022

1 min read

[Treatment of Rare Diseases] Digital crowdfunding platform now operational: Centre tells Delhi High Court

[Treatment of Rare Diseases] Digital crowdfunding platform now operational: Centre tells Delhi High Court

04 Aug 2021

2 min read

Has National Fund for Persons with Disabilities been set up? Delhi High Court asks Centre

Has National Fund for Persons with Disabilities been set up? Delhi High Court asks Centre

25 Apr 2021

2 min read

[BREAKING] Delhi High Court sets up Rare Diseases Committee and Fund; directs notification of National Policy for Rare Diseases

[BREAKING] Delhi High Court sets up Rare Diseases Committee and Fund; directs notification of National Policy for Rare Diseases

23 Mar 2021

2 min read

Delhi High Court constitutes nine-member Committee to deal with issues concerning treatment and therapy in rare diseases

Delhi High Court constitutes nine-member Committee to deal with issues concerning treatment and therapy in rare diseases

06 Mar 2021

2 min read

Right to Health is a Fundamental Right: Delhi High Court seeks finalisation of timeline from Centre on Draft Health Policy for Rare Diseases

Right to Health is a Fundamental Right: Delhi High Court seeks finalisation of timeline from Centre on Draft Health Policy for Rare Diseases

18 Jan 2021

3 min read

In the absence of any policy on rare diseases, Delhi HC directs AIIMS to treat an 18-month-old 'Gaucher' patient free of cost

In the absence of any policy on rare diseases, Delhi HC directs AIIMS to treat an 18-month-old 'Gaucher' patient free of cost

26 Mar 2020

2 min read

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